As a person that identifies with having a disability, I am often referring to my visual impairment (see my “About” section to learn more) but there is a huge part of my disability identity I have not addressed. I have struggled with mental health challenges my entire life but most seriously over the last three years. I have kept my struggles private and close to my heart, terrified to over-share in fear of the harsh judgments of others. However, I recently came to the realization that this fear was displaced; the only judgment I have to fear is my own. So why wasn’t I, the avid disability rights advocate, openly talking about my mental health struggles? Once faced with this question, I was able to really see how easy it is to get lost in society’s mental health stereotype, to believe that I was right to be ashamed.
But I have worked to replace my shame with loving, self-acceptance and my throat now burns with the desire to share this part of my story with you. Some of my earliest memories from childhood involve seemingly never ending, sleepless nights. I remember being absolutely terrified of bedtime, dreading the moment my parents would send me off to bed. I would desperately try to fall asleep before my parents went to bed knowing that if I didn’t, I would be up all night sick with anxiety, fending off panic attacks by sitting on the bathroom floor reading. I never confided in my parents about my sleepless nights because my irrational thought process, as a child, was that I would get in trouble for staying up reading. I also thought that this was all “normal” since it was all I’d ever known. My mom would even tell me stories about how I didn’t sleep much as a baby so I thought, “This is just the way I am”. It wasn’t until years later during my senior year of college when I was finally diagnosed with nighttime anxiety, that I started to look back on these nights and realized that no, these memories were not “normal” childhood experiences.
My senior year, like everyone else’s, consisted of impending changes and unknowns piled on top of the extreme stress of a rigorous course load. My mental health took a rapid plummet over the course of that year. I began having panic attacks almost nightly, which resulted in my diagnosis and being put on Zoloft, a popular antidepressant. I took the drug for a month and absolutely hated it. Zoloft made me feel numb to everything but especially to life. I decided that in regards to my quality of life, I’d rather feel everything, even my anxiety, opposed to feeling nothing at all.
By the time I graduated, I had reached a state of mind that I can best describe as a mental health break. My mind was broken. The lack of sleep and abundance of panic attacks left me feeling a way I, as the most positive thinking, life loving gal around, never thought I would. I did not want to be alive anymore. I wanted nothing more than a way out; for it to all stop. I can vividly remember thinking about how I had always questioned how people knowingly admit themselves to a mental health clinic and coming to the conclusion that I then understood. I feared for my mind, for my health, and for my life.
Unknowing how to communicate what was happening with me and fearing my own judgment, I faced my demons alone for the majority of that year. I was supposed to have it all together. I was and always had been motivated, successful, and happy. I had this idea in my head of whom I was and whom everyone around me expected me to be. My high self-expectations and judgment were huge contributing factors to my own downfall. But I will always remember the moment in which I could no longer remain silent. It took place at my graduation party as my mom was hugging me goodbye. I said three, little but freeing words to her, “I’m not okay” and broke down in tears while she held me. I know she immediately understood the true extent of what I was trying to communicate to her. Being the Wonder Woman that my mother is, she encouraged me to finally share my story with her and to begin my pathway towards recovery. And in doing so, she helped me to learn one of life’s most valuable lessons; it is okay, to not be okay.
At that point in my life, I had been practicing yoga for a few years so I sought out a yoga therapist in hopes of finding healing. My therapist designed a forty-day Kundalini yoga and meditation practice that specifically addressed my unique challenges. I can honestly and wholeheartedly say this experience changed my life. I was finally able to start understanding my mental health as a disability and the most beautiful part of that process was awakening to the fact that I could get better. There was a hope for relief and that changed everything. Yoga changed everything. Through yoga and meditation, I became aware of my own inner power and how to use it as a tool to keep my anxiety in check.
A huge part of my journey was and still is, understanding that I cannot cure myself of my anxiety; it is not ever going to go away. Anxiety is an irrational, illogical disease and it arises at the most inopportune times. But knowing and more importantly, accepting this allows me the space to use my own inner power to cope. That being said, I by no means have this whole thing figured out. I’m still learning everyday how to thrive while living with anxiety. My yoga and meditation practice have taught me everything that I know.
Having finally written my story, I feel a beautiful lightness. And this lightness brings me back to the original question, “why has it taken me, the avid disability rights advocate, so long to share my mental health story?”. While there is absolutely no shame in the decision to share or to not share any personal story, there is also no shame in facing mental health challenges. I have strongly advocated the need to normalize mental health issues and for them to be included under the disability rights umbrella. And yet, I still had to overcome the shame associated with having anxiety. I believe this directly corresponds with the deeply rooted stigma surrounding mental health and upon realizing this; I am called to action.
So please, read my story with compassion and share it with others. And in turn, I want to hear your own stories. I encourage you to reach out either through comments, emails, or private messages; I want nothing more than to hear your voice. Let’s have a conversation and let’s lift one another up. I am not the only one faced with mental illness and the stigmas that come with it. I am not alone. You are not alone. We are all in this together and I think it is now more important than ever to share our stories of struggle with one another in an effort to celebrate our connectedness as humans. And remember, it is okay to not be okay.
I am here for you.